My toughest year
I am joining Lotus from Sarcastic Mom in her breastfeeding carnival. I have read a lot of posts about women who loved it, women who didn't, women who persisted and women who decided formula was best.
My story is different. I can tell you that I breastfeed all three of my girls. My oldest and my youngest were breastfed exclusively for well over a year without any problems. I loved doing it.
But my story with Caroline was different. She was diagnosed in utero with a rare chromosome disorder. And we didn't expect she would survive. She did.
I won't go into all her details, as that story is so SO long, but I will tell you a bit about breastfeeding her.
She was wisked away to NICU as soon as she was born. 'she was full term but so tiny, only 4 pounds 2 ounces.
We thought she would need surgery as soon as she was born so I couldn't feed her. And I decided to start pumping that day. It was hard. I was so incredibly exhausted physically and especially mentally. But I couldn't bear the thought of her not being breastfed. After about a day, we were able to try feeding her. I rarely got a chance to try to get her to latch on so I kept pumping, every few hours, and giving the hospital my milk for her feedings.
When she was released from the hospital, they wanted her to get more calories than typical breastmilk or formula so we added a supplement to my milk and fed her by bottle. She came home, tiny as can be, at 2 weeks old.
For the next couple months we struggled so much with her. She had the most severe case of reflux. She would literally throw up almost every single feeding. We spent our days consumed with feeding her tiny amounts and trying to prevent her from throwing it up.
And I kept on pumping. I got the double electric pump from Medela which really helped, but the schedule was still incredibly hard. Especially since we also had a healthy 20 month old toddler running around as well. Initially, I would set my alarm and pump in the middle of the night. Or I would pump after Caroline's nighttime feeding. But it became too much and I gave up my nightly pumping. And it didn't have any affect on my milk supply.
In fact my milk supply seemed to be way more than Caroline could ever handle. I pumped bags and bags of the stuff and even started storing in my mom's and my MIL's freezer. We just didn't have the room.
Over time, pumping just started becoming part of the routine and became less of a hassle. I set up a pumping station at my computer and I would surf the web while pumping. I think that helped immensely. When I relaxed, and was less stressed, and had my mind off my pumping the milk bottles would sometimes overflow before I realized it.
At about 3 months old, Caroline was diagnosed with failure to thrive. She had still not even hit the 6 pound mark. We took her into the doctor for a check-up and ended up being hospitalized right then and there. She was throwing up so much of her feedings that she could barely gain weight. At the time, we didn't really realize HOW bad she was, but looking back on pictures, we see it. She was so thin and her hair was even receding.
And at that time, we began tube feedings. She was getting to the point where she was too weak to even eat much so we inserted a tube in her nose that went straight into her tummy and fed her with a syringe.
Somewhere in the middle of this, I did try to again get Caroline to latch on. I met with a lactation consultant. I tried all her tricks. I really REALLY wanted to breastfeed her. But I finally decided I couldn't keep trying. I couldn't handle one more thing added to my already overwhelmingly stressful life. It was a hard thing to come to terms with, but I felt much better once I did.
Caroline had more health issues over the next few months but things finally stabilized at about 6 months old when she had a permanent feeding tube implanted and her hiatal hernia was fixed which improved the reflux and vomiting.
I continued to pump for Caroline for over a year. As I said, it became routine. Over time, I began to cut out the number of times I pumped a day, one by one, to make life a little easier. I still continued to produce more milk than she ever needed.
There were times when pumping was a pain in the a#$. Like when we were going places for the day and I was forced to pump in the car. Boy, I HATED that.
Or when we were visiting family and I would have excuse myself and find a corner to pump in. I HATED that too.
But looking back, I swear to God that my breastmilk is the only reason Caroline survived her first year. I may be wrong, but she spent her first months barely keeping anything down. She was becoming a skeleton. And I swear that that tiny bit of that perfect first food is what kept her going.
After a year, we started supplementing with infant formula. And after 18 months we weaned her onto a toddler formula.
She has been doing fairly well over her 4 1/2 years. She definitely has her ups and downs, but she has come a long way from that tiny, skinny baby that barely hung on during her first 6 months.


20 visitors to our world:
this was a great post. You do what you got to do! Wouldn't anyone do everything they could to help their child survive? That's exactly what you did. It's hard to remember her being that tiny! And how short your hair was! I loved the last picture. It looks like she's saying, "See how happy I am now mommy?"
She's beautiful - everything you did helped her survive - you're totally right about that.
Irene that is an amazing story of love! I think the reason Caroline did survive and is doing so well today is because of the love and nurturing you gave her then and now. She's a lucky little girl!
Lizzy
Wow, great story. It definitely puts breastfeeding and the liquid gold that it produces into perspective.
You are my hero. You are so beautiful. Your daughter is so beautiful, and I have to go right now because this post has made me cry and snot all over myself like a big baby.
It is a wonderful thing you did for your sweet little girl. There is no doubt that the reason Caroline has done so well, was because of the "boobie juice" her mommy provided. Good Job!!
I'm new to your blog but just wanted to let you know that was a wonderful story.
You are as amazing as she is - all you did and have done for her. I'm sure it was difficult and is, but she is beautiful and sure worth all you've gone through. That was an inspirational story Irene - truly inspirational and she is so darling. Thank you for sharing your story with us.
Great story, Irene. I'm sure you've helped many young mothers out there and given them encouragement. What a first year you had with dear Caroline! Such a precious child!
Dear Irene!!!! I'm reading your blog posts from Italy and this was a great post. I didn't understand all things but I enjoy for your love and your shared love. Daily I'm trying to follow you and your family story. I often hope to post in this blog. God bless you and yuor mervallous childs, especially Caroline. Lot's love
Emanuele and Claudia Plasmati from Alba - Piemonte - Italy
manuplasmati@tiscalinet.it
You brought tears to my eyes. Caroline is, and has always been, beautiful. And the lengths you went to are amazing.
wonderful post!
Oh she is so beautiful!
Your story reminds me of my sister's journey with my niece -- although they didn't know anything was wrong until Jamie was 2 months old -- and now, Jamie is 11 and there is still no diagnosis other than "neurological problems."
But anyway, I love the look on Caroline's face. She looks so happy and has a "take that world" look! Just beautiful!
Hi Irene,
Thanks for sharing this with us. What a great post. You can feel the love for Caroline through this post. The last photo and the one of Caroline and her sister are just so sweet.
A very touching post...thank you for sharing. You did an awesome job with our daughter. Our children truly are miracles.
Kimmy
Oh Irene.
You are such a strong woman. And so determined. I loved this post and would love to hear more about sweet Caroline.
Mommy always knows best. Yu did what you felt in your heart was right and it was. Just porves that mommy does always know best!
Wow, I'm just in awe...
Thanks for sharing your story!
I have absolutely no doubt in my mind that your breastmilk kept her going. How very lucky Caroline is to have a mother who was willing to go the distance and do whatever it took to get her that milk, even when she wasn't able to breastfeed directly.
It's mothers like you that make me remember exactly why I became a lactation consultant.
truly amazing. no doubt she made it due to you and your will to help her and get the breastmilk !!
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